Daisy Mai Whittall

Daisy Mai Whittall was born 26th March 2006 (Mothers Day). At 5 weeks old she got a chest
infection,within the next few weeks she wasnt feeding properly and couldn't cry very well unless you
were sat in the same room you wouldn't of been able to hear her.
I took her to Blackpool Victoria Hospital where they xrayed her chest, we were told her heart was
very large they were refering her to Alderhey (Liverpool) the next morning, we felt sick with worry.
When we arrived they were all waiting for her with all the big machines to look at her heart, it
wasn't good I was told she had the one heart condition no one wanted as there was no operation to
put it right. Dilated Cardiomyopathy (left heart failier) Daisy Mai would have to be on medication I
was told she would either be able to live life on them but would not be able to do things a healthy
child would as she would become tired easily, or it could become so bad she would need a transplant
which would not be a cure for her and the chance of a child doner was very slim, the other thing
they told us was that it caused sudden death and she could go without any warning.
I couldn't believe it I was on my own been told all of this, it was to much to take in Daisy Mai's
dad was at home sorting our three other children I couldn't tell him over the phone, he came as soon
he could the doctor went through it again he broke down. The doctor arranged for a counciler to come
and see us, all we could think about was loosing our little girl how would we cope without her what
would it do to her brother and sisters. There was no improvement she stopped feeding, I had to learn
to tube feed her, she was in and out hospital with chest infections each one worse than the last.
At 5 months old we went to Great Ormand Street we were told her heart was so large we would be
lucky if she made it to her first birthday, it would be a week till we found out if they would put
her on the transplant list. When were told she was on the list everyone one was pleased I just felt
scared, sick the things that could go wrong, she might not survive it.
Two weeks later she was rushed into hospital she couldn't breath properly and was going blue. Daisy
was ventalated straight away it wasn't straight forward they told us she might not make it, her
viens had collapsed which made things more difficult. When we got to Alder hey she was taken to ICU,
when me and her dad got there it was a shock seeing all the machines.
The next day she had to have an opperation to have a Broviac line fitted into her neck for her
medication they said she arrested but they managed to bring her back the surgen said she was a tough
little cookie. Daisy Mai's left lung had been crushed due to the size of her heart. It is so hard
seeing your baby so helpless not being able to hold her, we got our first cuddle after 2 weeks I let
daddy go first as it was his birthday it was very emotional I had to hold back the tears.
A few days later she was moved to HDU there was still no news of a heart Daisy Mai was on the top
of the list in all of Europe, it was so unfair that for my little girl to have a chance someone else
had to loose there child.
Two weeks later 22nd October at 5am the phone rang in our room the nurse said she wasn't good I ran
over as fast as I could, there were so many people around her they asked me to go to the parents
room they had sent for her dad the other children who had come to stay with us, as soon as the nurse
said that I knew what had happend but they wern't saying anything. When her dad and children came
the doctors came to tell us, it was the the worst thing ever. Daisy Mai was gone this would be the
last time I would ever hold my beautiful angel.
There are so many emotions you go through every day you feel different. Everyone said the funeral
was lovely we played Fly by Celine Dion and You are my sunshine sung by children everyone had a pink
balloon to release once the service was over.
There isn't a minute goes by we don't think of her. Daisy Mai had such a short life she knows how
much we love her, she left a big impact on our lives and everyone that knew her, she has made us so
much stronger .
We miss you so much princess love you always xxx Mummy Daddy Mia Aaron Tilly and your new baby
brother Thomas


FLY (Celine Dion) played at Daisy's funeral


Fly Fly little wing
Fly beyond imagining
The softest cloud,the whitest Dove
Upon the wind of heavens love
Past the planets and the stars
Leave this lonely world of ours
Escape the sorrow and the pain
And fly again

Fly Fly precious one
Your endless journey has begun
Take your gentle happiness
Far too beautiful for this
Cross over to the other shore
There is peace forever more
But hold this memory bitter sweet
Until we meet

Fly Fly do not fear
Don't waste a breath, don't shed a tear
Your heart is pure your soul is free
Be on your way, don't wait for me
Above the universe you'll climb
On beyond the hands of time
The moon will rise' the sun will set
But I wont forget

Fly Fly little wing
Fly where only Angels sing
Fly away the time is right
Go now, find the light.

Thankyou to everyone that lights a candle or leaves a message for our beautiful girl. It means a lot
xxx